We’re back from our trip! Alyssa is now a teenager, and we started off big. Her condition recalibrated us to embrace life now. We pack her life with more adventure than both of our lives combined until now.
Thankfully, the drug trial seems to be helping her. She seems to be more energetic, which is heart-warming. We are deeply grateful. Please donate to support Dr. Nester’s research! It is this research that gives us hope of preserving her native kidneys. Alyssa’s fundraiser ends Jan 31. For each $100, Alyssa will happily bite her dad and send you a video. Al objects, having not agreed to this, but Alyssa is committed. 😂 https://goldrush.uiowa.edu/fundraiser-for-c3g-researchhttps://goldrush.uiowa.edu/fundraiser-for-c3g-research
One in a Trillion: Alyssa’s medical journey 