Kids are recovering well from their procedures. Alyssa is completely healed already. Brother is still recovering, thankfully back in school. In another week hopefully he’ll be able to return to sports.
Recently Alyssa attended a birthday party, and due to dietary restrictions plus being post-op, she could not eat anything there. Not eating gathers too much attention, and lots of classmates kept asking why? A lot of classmates don’t know the details of her condition, as their parents are not on Facebook for me to connect with. She found it tiring to be bombarded with the same questions over and over again.
Next up, flu shots and hoping Alyssa responds, more blood work, continuing to ride the rollercoaster of watching her protein levels, establishing care with a new pediatric nephrologist, finding brother an orthodontist, and some house repairs that remains neglected. Al has finished reviewing 900+ applications, only to emerge with a fu Manchu mustache. Just kidding, he doesn’t have the genetics to grow one.
One in a Trillion: Alyssa’s medical journey 