Alyssa will have her blood test next week. The blood will be sent out, and we will have an appointment with nephrologist in a couple weeks. Please pray for this appointment. We hope her calcium will be higher, her cholesterol will be lower, her blood pressure remains lower, and that the protein in her urine is lower. It is still early to be hopeful of her kidney function to improve (ideally see results by 3 months), yet we remain hopeful. This appointment will possibly add another immunosuppression medication and also determine if she needs to start a medication to bring her cholesterol down.
She is handling her current medications well. The moodiness is not as bad as before. She is adjusted to the low salt diet, and doesn’t mind as much. She is also much more agreeable about eating healthier for her cholesterol, which is nice.
She said this was one of the best weeks (emotionally). She lost a tooth, my parents moved MUCH closer, her best friend returned from vacation and got to see her, we got to see fireworks from our car, she made slime, and more. Al caught her a couple monarch butterflies, they got busy, and in a couple days we had 40 eggs! We can’t feed them all, so thank you to everyone who took most of them. They’ve been growing quickly.
One in a Trillion: Alyssa’s medical journey 