I have no medical updates.
Considering she’s not feeling sick at all, you might be confused as to how we started to find out in the first place. Here’s the short story.
3 years ago we went to the Emergency Room for something else, and she got a full work up. Turned out she had constipation. The urinalysis at the time showed traces of protein and blood in urine, so we were instructed to follow up on that. Our pediatrician explained that it’s common for kids to have protein and blood in urine up to 6 months after an infection, so we should test her after 6 months of no infection. As we were following it, the proteinuria was trending upwards despite her not getting sick, which prompted further blood tests, and then the biopsy.
We consider ourselves fortunate to have caught this early, before any manifestations of symptoms that would have suggested permanent kidney injury.
My anxiety is smoothing out slowly with each step. We got to see relatives over the past couple weeks, some of which was the first time since Covid hit. It was a cautious leap of faith, some of which took months of rescheduling because of colds. But to hang out again was great. Seeing my in-laws was comforting. Seeing my brother’s family was stunning, as his kids are now no longer smaller than me. But teens are never too cool for us to still share ridiculous random stuff with them, like that nasty YouTube video of pouring soy sauce on a freshly killed octopus before eating it, to make it dance again. And my mom squeals and slaps Al’s arm, my dad grimaces, and we all laugh. It’s good for the soul.
One in a Trillion: Alyssa’s medical journey 